Ginny Russell recently led on a film about the autism community’s questions for a biomedical consortium that is developing drugs to treat autism called EU-AIMS.
Two public events organised by members of the EU-AIMS Ethics advisory board (led by Ilina Singh, University of Oxford) one in the UK and one in Denmark were conducted as part of the consortium’s on-going PPI activities in 2014 and 2015.
Sixty-six individuals submitted written comments on the consortium’s research after these events, most were questions that autistic adults or parents of individuals with autism had raised. We summarised their questions in this video and put them to the scientists at the EU-AIMS 6th annual Meeting in 2017.
An associated paper is available here http://blogs.exeter.ac.uk/exploringdiagnosis/files/2017/11/hex.pdf