Our evaluation report on our public engagement activities are out! Although we still have more screenings and events this year, independent evaluator Helen Featherstone has been examining the impact of our activities.
People who watched the films at the events we have attended over the past year were asked to fill out questionnaires and reflect on what the films meant to them.
Some voices lifted from the questionnaires:
- “Good to think about the complexity of the experiences of diagnosis.”
- “Diagnosis – is this what people who are neurodiverse need?
- “The primary focus of celebrating difference. Have head the words previously but having that concept demonstrated visually and with music has truly made the concept real for me.”
Read the full report here: Autistic Voices on Film
We have had a very busy time with the ExDxFilms over the past few weeks! On 7th November we showed the films to a mixed audience as part of the Wellcome Centre for the Cultures and Environments of Health public event ‘Researching Disability and Impairment: Creativity, Engagement and Social Change’. Organised by Charlotte Jones and Luna Dolezal, and held at the Royal Albert Memorial Museum (RAMM) in Exeter, it was a fascinating event with presentations and discussions touching on a variety of issues, from the ethics of research data to the experience of ‘time’ in the context of ‘medical waiting’.
We were extremely fortunate that Eddie Callis and his mother Jacqui were able to travel up from Cornwall to take part. In answer to questions posed by his mother, Eddie spoke about his experience of taking part in the production of the ExDxFilms and how he has continued with the art of animation. Bringing along both paper artwork and animation on his lap-top, Eddie showed us how he is producing an ebook to describe some of the challenges he faces in his daily life, including certain ‘triggers’. Eddie also delighted us by sketching through the afternoon producing some wonderful outlines of people, beautifully capturing their personas with just a few well-placed lines. Below is an example his work.
Just a few days later on the 11th November Eddie joined us once again, this time at an early evening showing of the films at the Cornwall Film Festival in Falmouth. The public event was entitled Thinking Differently! Celebrating Neurodiversity.
Again the room was set up with a table area for Eddie to sketch and to show his work – and again Eddie held the audience describing his experience with ExDxFims brilliantly and his on-going use of animation to express his challenges and feelings.
We are very much indebted to Eddie, and his family, for coming to these two events. Eddie’s presence added greatly to the value of the events. We would also like to thank Louise Fox, Director of the Cornwall Film Festival, and all her colleagues, for so generously and warmly supporting the Event.
Lastly on the 4th December we were back in Exeter showing the ExDxFilms at the THE ExIST STEAMM SHOW at the Exeter School of Art. Our audience during the day included students and educators from the surrounding area and in the evening members of the public. It was a great event with presentations covering technology, dance and virtual reality (VR), Smart Cities and solar artworks to name but a few. The ExDxFilms once again received good feedback. Our pile of leaflets on Autism and Neurodiversity disappeared rapidly and several tutors spoke of including the Films in their future lectures.
We have had some useful feedback from our films but more comments are always welcome. Here’s a summary:
Sharon Brooks, Sheffield Adult Autism & Neurodevelopment:
I am very impressed with the films. We may use them in some of our psycho education sessions for people who have just been diagnosed. I will also forward to colleagues in other services to use as part of autism awareness training for their staff.
Naome Glanville, Arts & Culture Exeter:
The project looks very interesting – I’ve just had a look through one of the films, (The state of being different) and it looks beautiful and the voice-overs are wonderful too.
Dr Tsung-ling Lee, Taiwanese Research Fellow:
…really liking the sensitivity and gentleness of the way the films are done. … it’s lovely to hear these individuals’ narratives, which sometimes are lost in the public dialogue.
gillywillybythesea, YouTube comment:
(about In My Head and Heart) Heartwarming – and very calming / grounding to watch and listen, too.
Do visit our films and keep sharing: https://www.youtube.com/results?search_query=%23ExDxFilms
We are so pleased with the support our ExDx Films have received online with now over 2000 views! We will be continuing to tour the films throughout the rest of this year and well into next across the UK and possibly further afield. Below are current planned dates and links for the film festivals we’ll be appearing at this autumn. These events provide an opportunity where you can come and see the films and participate in conversation about them with other stakeholders.
26th September: Wales Neurodiversity Network, Cardiff. Here our films and experiences of making them) as a study day. They are a mixed group of professionals including SALT, Educational Psychologists, Psychologists, Psychiatrists, teachers and OTs all working in the field of neurodiversity.
7th November: Wellcome Centre for Cultures and Environments of Health Disability and the Arts Symposium, ESRC Festival of Social Science, Royal Albert Memorial Museum, Exeter
11th November: Cornwall Film Festival, The Poly, Falmouth. Join us and click attending on the Facebook event .
After their journey across the Atlantic, J.A.’s paintings have finally been framed and are now proudly hanging in our building at the University of Exeter.
We love both these paintings and think they are excellent and thought-provoking additions to our hallways.
Thanks again to J.A. and his family for arranging for us to pick up the paintings and meeting us in Canada.
Thursday 20th June marked the fourth screening of our Exploring Diagnosis Films. This time we were hosted by Calling the Shots (CTS), the Film Production Company involved in the making of the #ExDxFilms. The venue was Spike Island in Bristol, home to CTS.
We really enjoyed the insightful discussion that interspersed and followed the films. It is important to us that our films have impact so we are particularly please when we receive feedback indicating that the films do appear to be stimulating people to consider various aspects of autism and neurodiversity.
So far, we have two more screening events lined up for this summer (information to follow) and hope to also have the Films available as Open Access online before the Autumn. Watch this space!
Recently ExDx Research Fellow Dr Steven Kapp went to meet one of the project’s featured artists, JA Tan, in his native habitat. His studio is in Vancouver, Canada on Granville Island, is a creative paradise where artists study, work, and show or sell their products in crafts shops, boutiques, and galleries. Indeed, JA studied down the road at the Emily Carr University of Art and Design.
A table with awards and honours for some of JA’s achievements over the years greets entrants to his studio. His beautiful paintings decorated the peaceful space, illustrating scenes inspired by his travels around the world as well as his inner experiences. It was exciting to see the full-size piece ‘Throwing a Party’, which the ExDx website features on JA Tan’s page: https://blogs.exeter.ac.uk/exploringdiagnosis/artistsbiographies/ja-tan/!
Thank you to JA and his mother Zelie and father Vince for their generous hospitality in Vancouver, and it was lovely to see them again in San Diego.
Thanks to the organisational skills of both Debra Muzikar and Dr Lamis Jabri from the Art of Autism our Films made their first International appearance at the Mozart & the Mind Symposium, San Diego on Sunday June 2nd.
Screened to an audience of both neurotypical and neurodiverse adults and children the Films were well received with comments ranging from
“What thoughtful films.” and
“Just loved them!” to
“Moving, they made me cry!”
Sitting in the audience was one of the artists featured in our films, the talented JA Tan.
JA Tan with his artwork.
It was both a delight and privilege to meet him and his family at the event.
JA’s mother, Zelie, snapped on the first day of the Symposium with a collection of JA’s work including T Shirts featuring Dancing Silhouette Figures.
Vince, JA’s father, on the second day of the Symposium with yet more of JA’s incredible artwork.
At the end of the day Dr Jean Harrington, Project Manager for the Films, and Dr Steven Kapp, Research Fellow on the Exploring Diagnosis study were able to join a panel of experts, including musicians, members of the medical profession, film makers and parents of young people with a diagnosis of autism, to consider the content and outcome of the successful two day Symposium.
It was a significant event for #ExDxFilms and we would like to thank the organisers of the Mozart & the Mind Symposium and especially Debra Muzikar and Dr Lamis Jabri from the Art of Autism for their kind and generous support.
The next screening of our #ExDxFilms is planned for Thursday 20th June 2019 at Spike Island.
We are taking our films International this weekend! The #ExDxFilms will be shown at the Mainly Mozart and the Mind Annual Symposium in San Diego on Sunday (2nd June).
This day of the symposium aims to share practical strategies to help families and professionals amplify and expand interests, strengths or talents of autistic people. The day’s talks will culminate in an interactive expert panel – on which our team member Jean Harrington will sit – addressing questions from the audience.
We’re very excited to see how our films will be recieved at such an important festival where the audience will include prominent autism researchers and activists.
Full festival timetable can be found here: https://mainlymozart.org/mozart-the-mind-2019-calendar-events/