Talking Deck to help people with life and health issues

The Talking Deck is a new resource that has been co-designed by researchers from the University of Exeter, staff and volunteers at CoLab Exeter’s wellbeing hub, people with lived experience of homelessness, and artist Hugh McCann. The project is aligned with Project HAIRE and is based on the Guided Conversation model, showing how the HAIRE toolkit can be customised for different target groups.

The Talking Deck aims to facilitate conversations that are led and shaped by individuals seeking support. Sometimes the purpose of a conversation is simply to allow individuals to share their experiences with staff and volunteers at CoLab Exeter. As seen below, the cards in the deck include a collection of symbols, words and place-based images. They are carefully curated to help people speak about the issues that are important to them.

A variety of Talking Deck cards are in the photo, e.g. a key, a heart, trainers, animals, pictures of Exeter and words such as 'yesterday', 'future' and 'fear'.

Over a series of workshops, staff, volunteers, researchers and people with lived experiences came together to co-design the Talking Deck pack.

“Listening and co-production has been at the heart of this project. We’ve created these together with people from all sectors and walks of life. The cards are a way to facilitate conversations and help people find a way forward without getting to crisis point. People want to be listened to, first and foremost. To be seen and be validated.”  — CoLab Joint CEO Fiona Carden

The project was a partnership between researchers from the University of Exeter (Catherine Leyshon and Shukru Esmene from the Social Innovation Group‘s HAIRE team and Lorraine Hansford from the Wellcome Centre for Cultures and Environments of Health), CoLab Exeter and Devon Mind, funded through HAIRE and an ESRC Impact Accelerator Account (IAA) award. The IAA helped to translate the main principle of HAIRE’s Guided Conversation tool into a resource that suited CoLab Exeter’s working culture and the individuals who use their wellbeing hub. The principle here being the use of meaningfully co-designed visuals to facilitate wellbeing-related conversations.

“Seeing the Guided Conversation transform into the Talking Deck has been an incredibly exciting and rewarding process. Transferring our tools into new settings to help different groups and organisations always depends on successful co-design. We have worked alongside staff from CoLab and people with lived experience to produce something that can genuinely help people to have more in-depth, productive conversations about their needs, aspirations, hopes and fears.” — University of Exeter researcher Professor Catherine Leyshon

CoLab Exeter’s wellbeing hub hosts around 30 voluntary sector and statutory organisations who support people in Exeter with experiences of homelessness, addiction, the criminal justice system, the care system and domestic abuse. Over a series of workshops, staff, volunteers, researchers and people with lived experiences came together to co-design the Talking Deck pack. The packs are currently being trialled by staff and volunteers at CoLab and in other organisations, for example Julian House have experimented with using the Talking Deck in key worker support sessions with young adults in supported accommodation. So far, feedback from users of the Talking Deck has focused on how the cards help facilitate conversations that are led by the individual, rather than the staff member.

“It’s been really exciting to hear people’s reactions to the new cards. Support workers who have tried them out reported back that they were surprised how well such a simple tool opened up conversations, and helped people to talk about things that were important to them that they hadn’t raised before.” — University of Exeter researcher Lorraine Hansford

Workers commented that using the cards had given them more insight into people’s interests and concerns, and ‘opened different doors’ for people to talk about what is important to them, with issues sometimes emerging that would not necessarily come up in standard assessments used by the organisations:

“I was sceptical at first… I was quite surprised at how it was more powerful than I thought.”

“It’s another way of communicating with people, pictures have a connection to memories. For people who are vulnerable, talking can be intimidating, and it can bypass that in a gentle way.”

There is still work to be done, as the project does not intend to be prescriptive about how the resource is used. Ways of using the cards need to consider how some individuals may find engaging with the entire Talking Deck overwhelming and/or feel unsure about where to start. Continued exchanges between organisations that use the cards will be valuable in promoting the flexibility of the resource and in sharing new practices. Importantly, a Mental Health Alliance, including CoLab Exeter and Devon Mind, can potentially provide a platform for practice-led exchanges and skills sharing to take place. The Talking Deck’s launch will engage members of the Mental Health Alliance in scoping the coordination of such a platform.

Overall, the Talking Deck can be used informally in different settings to help guide conversations. The cards predominantly intend to give people choice about the topics that they wish to discuss, whilst helping to start conversations that may be difficult for people to raise.

After collating a last round of feedback, the finalised Talking Deck was launched at an event at CoLab Exeter on 3rd May 2022.

For more information, contact: Professor Catherine Leyshon (c.brace@exeter.ac.uk) or Lorraine Hansford ().

Picture of collaborators from MIND, CoLab and the University of Exeter

Left to Right: Tom Cox (Devon MIND), Fiona Carden (CoLab), Lorraine Hansford and Catherine Leyshon (University of Exeter)

 

 

Kate’s Grand Tour, Part 2 of 4: Arriving in Laakdal, Belgium

Professor Catherine (Kate) Leyshon, our Principal Investigator, was able to travel for the first time since our project launch in early 2020. She referred to her trip as the “Grand Tour”! We asked her to write about her journey to East Sussex and subsequent visit to Laakdal in Belgium, and give us a writerly flavour of what those places look and feel like, since we’ve been unable to visit. Here’s part two: her first glimpse of Laakdal. More to follow!

I arrive on the Eurostar in Brussels and pick up a hire car for the drive to Diest, the town where I am staying about 25 minutes away from the municipality of Laakdal, in the province of Antwerp. The municipality comprises the towns of Eindhout, Veerle, Vorst, Varendonk and Vorst-Meerlaar, all of which are involved with HAIRE. Diest is a pretty, well-kept town with narrow cobbled streets and new buildings tastefully blended into its historic town-centre. I take a walk up through a leafy park and back through the town square, lined with canopied restaurants where diners are enjoying the warm spring evening.

The next day, I drive to Vorst in Laakdal. Initially my car’s sat nav wants to take me to Vorst near Brussels but I realise this is in completely the wrong direction! I drive out of Diest and I’m quickly into the flat, farmed landscape of this part of Belgium. The road is straight and quiet. As I reach Vorst, I notice how quiet and tidy it is. We are meeting in the fantastic Gemeentehuis. Recently constructed and serving the whole municipality, it contains the library, a post office, meeting rooms, the only bank machine in town and some local council functions.

I meet four volunteers who have some fascinating insights into their experience of using the HAIRE toolkit. They are very generous with their knowledge, and – with a retired Alderman amongst their number – we have an in-depth discussion about new models of service design and delivery. The issues in this part of rural Belgium are familiar across the project: people growing older sometimes become less confident and stop going out as much. They become isolated and suffer some consequences to their overall wellbeing. The Guided Conversation has helped to reconnect them to the community. The partners are especially looking forward to taking ownership of a new minibus; transport here is very limited – it’s no surprise that getting around is a problem in all our pilot sites.

Kate’s Grand Tour Part One: A Visit to Rother

Professor Catherine Leyshon, our Principal Investigator, was able to travel for the first time since our project launch in early 2020. She referred to her trip as the “Grand Tour”! We asked her to write about her journey to East Sussex and subsequent visit to Laakdal in Belgium, and give us a writerly flavour of what those places look and feel like, since we’ve been unable to visit. Here’s part one, starting in Rye, East Sussex. More posts to follow!

I arrive at Rye station in afternoon spring sunshine opposite Jempsons, which looks to be a well-stocked grocery store/deli with attractive displays. It’s a short walk to the Ship Inn through the historic redbrick town centre. It’s rush-hour in Rye, with children eagerly getting on the train home from school. The offices of the Bluebird care agency remind me that Rye has an aging population, many of whom suffer from isolation and loneliness. This is why Rye is part of HAIRE, along with the nearby town of Robertsbridge, both in the county of East Sussex.

I turn off the delightfully named Wish Street onto Wish Ward in the direction of a disused factory, a piece of industrial heritage referencing the area’s past. A former bakery, it now houses a pottery. I walk past picturesque redbrick and half shingle houses. The pretty townhouse along a cobbled street with a new Jaguar parked outside tells a story that I’m only too familiar with from Cornwall where the picturesque rural setting can hide great disparities in wealth. Mermaid Street, with its ancient, rounded cobbles, opens up to my left. The Ship Inn – my destination after 7 hours traveling from Cornwall, sits in an attractive riverside location. After dumping my bags, I go for a run along a levee between the river and a nature reserve. It’s a lovely part of the world – startlingly flat compared to Cornwall.

The next day, I meet four volunteers from HAIRE and the team from East Sussex County Council, Rother Voluntary Action, and Lorna Ford, the new Deptuty CEO from Rother District Council. We all feel thrilled to be able to meet up after two years on Teams. In that time, 16 volunteers have been recruited and trained, 76 Guided Conversations have been held and more than 200 hours of information about health and wellbeing have been used in the research analysis. Key themes prioritised through the innovation process are loneliness, accessing information, life transitions, and staying active.

We have a great meeting, discussing the volunteer experience of using the HAIRE toolkit – especially the Guided Conversation – and the legacy of HAIRE which will be felt through the pilot projects in Age Friendly Rother, now officially a part of the World Health Organisation’s Age Friendly Community programme.

The eight domains of Age Friendly Communities are illustrated. They are: Communication and Information, Community and Healthcare, Transportation, Housing, Civic Participation and Employment, Outdoor Spaces and Buildings, and Respect and Social Inclusion. 

Above: the eight domains are Communication and Information, Community and Healthcare, Transportation, Housing, Civic Participation and Employment, Outdoor Spaces and Buildings, and Respect and Social Inclusion. 

 

 

A systematic review on the impact of social networks on loneliness among older people in rural areas

As part of the HAIRE project, the University of Plymouth is undertaking a systematic review on the impact of social networks on loneliness among older people living in rural areas. In this month’s blog, Basharat Hussain and Mahrukh Mirza, from the University of Plymouth, explain the process and findings to date.

Healthcare related decisions are critical and therefore need to be based on high quality scientific evidence. The scientific evidence on a topic is generated through individual studies. However, evidence from a single study may not offer confidence to policy makers and practitioners to change an existing practice or adopt a new intervention. This requires an acceptable method to pool all the relevant evidence on a topic and to make the information accessible to busy policy makers and practitioners.

Systematic review is a well-recognised method of identifying, evaluating and summarising evidence from all relevant individual studies, thereby making the available evidence readily accessible to decisionmakers. In a systematic review, all studies published on a topic (in our case, healthy ageing) are searched through online bibliographic databases (e.g., MEDLINE). The online searching of databases is undertaken using a comprehensive, reproducible, and predefined search strategy. This search can result in few hundreds to thousands of studies published on the topic globally or a geographical region of interest (e.g., Europe). The searched studies are screened using strict and narrow inclusion and exclusion criteria. These criteria can consist of research participants (e.g., age over 60 years), setting (e.g., rural areas) and phenomenon of interest (e.g., impact of social network on loneliness). All studies meeting the inclusion criteria are thoroughly read, quality assessed, and their findings synthesised. The final product is a summary of findings on a topic of interest and identification of any gaps for further research in that area.

Image Source: https://libguides.library.curtin.edu.au/systematic-reviews

The review started in January 2022 and will be completed by April 2022. A comprehensive search strategy has been developed to search five main healthcare related databases on the topic. The search has identified over 38,000 published studies on the topic globally, starting from 1954 to January 2022. Screening of the published studies is underway. An interesting finding struck during the screening process is an acute lack of research on social networks and loneliness among older people in rural areas of Europe.

The findings from this review will be helpful not only for the HAIRE project, but also for policy makers, practitioners and researchers who have an interest in the topic. If you are interested in knowing more about this systematic review or would like to have copy once the findings are published, please get in touch with Dr Basharat Hussain, Research Fellow in Health Innovation, University of Plymouth (Basharat.hussain@plymouth.ac.uk), OR Dr Mahrukh Mirza, Lecturer in Clinical Education, University of Plymouth (Mahrukh.mirza@plymouth.ac.uk).

Crossborder Recipes: The HAIRE Christmas Party 2021

Season’s Greetings! After nearly two years of working together throughout the Covid pandemic, the team has still not managed to meet up in person since the project launch in early 2020. At the end of 2021, plans for our first face to face gathering were once again thwarted by the emergence of Omicron, but we are still finding ways to connect with each other on a personal level despite everything. To celebrate the season, the HAIRE team got together virtually to share their favourite family recipes from each of our four countries: the UK, France, Belgium and the Netherlands. Such was the response we decided to make our own HAIRE recipe book, featuring tasty dips and snacks, desserts and treats from across the 2Seas region. Below are a few highlights …bon appetit!

Kaat’s Appelbol (The Netherlands)

 

 

 

 

 

 

 

 

 

 

 

 

 

 

HAIRE is about “a good old age”: project progress in Laakdal

Thanks to our colleagues in Laakdal for sending us a news article which was published after a large stakeholder event discussing the co-creation and prioritisation of local social innovations. Below is a translation into English of the article by Annelies Frederickx published on Wednesday 20th October, 2021. You can read the original article at source here.

The seniors of Laakdal debate four themes: mobility, leisure, caring for tomorrow and communication — © AF

Laakdal is the first municipality to undertake the European participation project HAIRE.

HAIRE’s pilot site in Laakdal involves a partnership between the local government and Welzijnszorg Kempen, an organisation specialising in the health and wellbeing of the most vulnerable in society, including older people. In Laakdal, 28% of the population is senior, so the municipality is ideally suited to explore the possibilities of co-creation with older people. There is also interest from adjacent areas, Mol and Herselt, in working with HAIRE.

Katrien Serroyen of Welzijnszone Kempen takes an active part in the debate. — © AF

The first part of the started in September 2020 with a neighbourhood analysis (a mapping of resources with residents in the neighbourhood; see this earlier blog post for an overview of what this entailed in Feock, UK, one of our other pilot sites.) Volunteers were then recruited to carry out “Guided Conversations.” Sixteen volunteers set out from the community to interview 71 older people. The respondents were 60, 70, 80 and 90 years old and they lived all over Laakdal. The Guided Conversations contain place- and person-related questions, as well as a section on personal empowerment. The results yielded a long list of more than a hundred action points. In consultation with the municipal council, the project team has filtered four priorities from this: mobility, leisure, care for tomorrow (dementia and early care planning) and communication. The older people surveyed all expressed the wish to rename the HAIRE project ‘A good old age in Laakdal’, as the English acronym did not resonate as strongly.

Sofie Schepers is an expert community-oriented care provider in Laakdal. — © AF

During the kick-off in the local meeting centre, some thirty people over sixty set to work on the four priority themes. In each domain, they identified the most important difficulties and looked for possible solutions. Rosa Wilms took an active part in the debate as she has been involved from the start: “When I read the call in the municipal information sheet, I immediately applied to be a volunteer”, Rosa Wilms reveals. “I was alone and this seemed to be an ideal pastime for me. I like to chat and through the project I was also able to make new contacts. I had a total of ten conversations, four online and six at home. They were all intense but wonderful conversations.”

Rosa Wilms has been involved in every phase of the project. — © AF

“My chats showed that older people in Laakdal struggle with a lack of respect from neighbours, young people and from traffic”, Rosa Wilms adds. “Of course there’s not much a municipal council can do about that; we all have to work on that together. I completely agree with the four chosen themes. Choices must of course be made and it seems realistic to me that the municipal council can achieve things in those four domains. The most important thing for me, however, is that we are being listened to.”

Difficult points to resolve or improve were noted for each theme. — © AF

Sofie Schepers, who leads the project for the municipal government, had good news for the participants. “The municipality is buying a van and it will be available to all older people in Laakdal. It can be used to provide transport to activities in all boroughs and we are also looking at the possibility of, for example, providing transport to the local market. The aim to provide ‘A good old age in Laakdal’ has only just started, but we are well on our way.”

CREATE Juin 2021 – Réflexion (French translation)

Our French intern, Valentine, has again translated this month’s blog for us into French.  It is a research reflection by Shuks Esmene, our postdoctoral research fellow. To read the original English language version, click here.

A l’occasion des ateliers CREATE, les partenaires du projet HAIRE se sont rassemblés pour discuter de leurs premières idées d’innovations destinées à améliorer le bien-être des séniors dans les sites pilotes. Les outils de recherche utilisés dans le cadre du projet représentent un aspect essentiel de l’apprentissage HAIRE. En particulier, les expériences et les idées de tous les partenaires, y compris des bénévoles et des participants, sont aussi importantes que ces outils le sont pour identifier des actions axées sur la personne et adaptées au milieu qui soient pertinentes à échelle locale.

Notre atelier de poésie a montré que les partenaires de prestation et les équipes de recherche du projet HAIRE sont parvenus à élaborer un environnement favorable à la discussion – même en ces temps troublés ! Les souvenirs de ces personnes âgées avec qui nous avons des liens privilégiés, par exemple des parents, des grands-parents, d’autres membres de la famille et des amis, ont inspiré une séance riche en émotions. Un de nos partenaires a fait remarquer :

« Ce ne sont pas des larmes de tristesse ! »

La remarque ci-dessus concernait un grand-parent défunt et résume la façon dont nos liens avec les personnes qui comptent pour nous s’étendent au-delà de leur présence physique auprès de nous. Bien qu’elles ne fussent qu’une parenthèse parmi les autres activités du projet, les réflexions que nous tirons de telles expériences peuvent aider HAIRE à amorcer des conversations relatives à l’intégration des soins dans nos communautés. Des soins plus approfondis. Des soins qui surpassent les besoins fonctionnels des individus. Ces besoins sont extrêmement importants, bien sûr. Cependant, le bien-être ne se limite pas à la somme des besoins fonctionnels d’un individu.

Les Conversations Guidées du projet HAIRE ont révélé que les activités et les passions qui importent aux participants (marcher, tricoter, lire et se rendre à des marchés locaux, entre autres) leur ont apporté de la joie et, malheureusement, de la tristesse lorsqu’ils n’ont pu s’y adonner pendant la pandémie. Ces conclusions ne sont en aucune façon propres au projet HAIRE, mais elles lui offrent plusieurs possibilités. Le réseau HAIRE, constitué de personnes soudées et attentionnées, va nous permettre de réfléchir différemment à notre façon de procéder face à ces conclusions. Certes, il est important de faire une liste des activités et des passions présentes dans une région, et de s’assurer que ces activités sont proposées à ses habitants, mais il faudrait aussi offrir l’opportunité aux séniors de développer de nouveaux centres d’intérêts et de nouvelles passions – ce serait une façon d’ajouter de la capacité à un lieu donné. La variété des activités et les activités extracurriculaires sont considérées comme une partie fondamentale du développement de l’enfant (1).

Je pense souvent à cette façon que nous avons d’essayer de trouver et de doser un assortiment d’activités spécifiques dont la population adulte puisse bénéficier – plutôt que de nous appliquer à mieux comprendre les modalités du bien-être de chaque individu. Comme nous l’avons dit durant nos discussions sur l’innovation au deuxième jour des ateliers CREATE, cela peut faire la différence d’« être prêt à commencer modestement » afin de produire des innovations qui restent ouvertes aux contributions des habitants – particulièrement si les opinions et points de vue reçoivent une réponse et ne sont pas perdus au fil des démarches administratives. A ce titre, les solutions numériques contribuent largement à améliorer la sensibilisation, mais c’était aussi encourageant de voir des idées se développer lors des ateliers autour des activités en face à face et de la notion d’« aller vers les gens ».

Dans leurs réponses aux Conversations Guidées, les participants ont communiqué l’importance qu’ils attachent aux interactions en face à face et aux évènements de rassemblement convivial. De plus, même si nous l’avons appris par le biais d’anecdotes, nous ne pouvons oublier que les commerçants et les docteurs étaient bien plus profondément intégrés dans les quartiers ruraux par le passé. Les services avaient plus souvent lieu en face à face, et ces expériences doivent être prises en compte lorsque l’on réunit des personnes âgées.

Par ailleurs, des préoccupations primordiales vis-à-vis du profil des participants recrutés jusqu’ici ont été soulevées lors des ateliers CREATE. On considère souvent qu’une méthode de communication qui attire et inclus les groupes vulnérables et marginalisés représente un défi (2). Les communautés inclusives doivent s’assurer que tout le monde sent qu’il ou elle fait partie du lieu dans lequel il ou elle vit, et que l’opportunité d’exprimer ses opinions leur soit donnée de façon à ce que tout le monde puisse contribuer à façonner l’avenir du lieu en question. Parvenir à une compréhension plus inclusive du bien-être représentera un défi important pour le projet HAIRE, et la démarche consistant à « être prêt à commencer modestement » pourra nous être bénéfique dans cette mesure également. La recherche a parfois tendance à se focaliser sur des chiffres et des objectifs à accomplir, tous les deux générés par des groupes larges et soi-disant représentatifs. Toutefois, si nous nous posons des questions essentielles sur les points de vue variés que nous avons recueillis pendant les Conversations Guidées, nous pouvons commencer modestement. Des questions telles que : comment se fait-il que quelqu’un qui s’est occupé des autres, et qui a travaillé dur dans un secteur qui n’est pas généreux économiquement, peut se retrouver dans une position financière précaire plus tard dans sa vie ?, et, que pouvons-nous faire pour impliquer quelqu’un à échelle locale quand cette personne n’a pas pu développer et/ou approfondir des centres d’intérêt à cause d’une enfance ou d’un début de vie d’adulte mouvementés ?

Enfin, la question qui selon moi ressort le plus de nos séances CREATE est :

« Pourquoi sommes-nous, en tant que société, si mauvais à cela ? »

La réponse se trouve peut-être dans une nouvelle conception des soins, une conception selon laquelle les soins seraient reçus et donnés par des individus dans leurs communautés, et ne seraient pas simplement un service dédié à répondre aux besoins fonctionnels des personnes âgées. Fait encourageant, nous avons parfois accompli cela au sein de projet HAIRE – que ce soit entre les chercheurs et les équipes de prestation, entre les équipes de prestation et les bénévoles, et/ou entre les bénévoles et les participants. Notre prochain défi sera de trouver des façons d’impliquer les donneurs de soins dans le projet, sur tous les sites pilotes, plus étroitement encore. J’ai hâte d’affronter ce défi.

Footnotes

1. Metsäpelto, R., & Pulkkinen, L. (2012). Socioemotional Behavior and School Achievement in Relation to Extracurricular Activity Participation in Middle Childhood. Scandinavian Journal Of Educational Research, 56(2), 167-182. doi: 10.1080/00313831.2011.581681

2. Meyer, C., Evans, D., Soucat, A., Dkhimi, F., Akweongo, P., & Kessy, F. et al. (2018). Leaving no one behind? Reaching the informal sector, poor people and marginalised groups with Social Health Protection. Journal Of Poverty And Social Justice. doi: 10.1332/175982718x1536143686739

CREATE Research Reflection: Caring

This month’s blog post is a research reflection penned by Shuks Esmene, our doctoral research fellow.

HAIRE’s CREATE workshops (held June 2021) brought together the partnership to discuss our initial ideas for innovations to improve the wellbeing of local older adults in our pilot sites. The research tools being used in HAIRE are a key part of the
project’s learning. Notably, the experiences and ideas of all project partners,
including volunteers and participants, are as important as these tools in
identifying person-centred and place-based actions that are locally relevant.

Our poetry workshop demonstrated that HAIRE’s delivery partners and
research teams have been able to build a comfortable environment for
discussion – even in these challenging times! Memories of older adults that we
hold special connections to, including parents, grandparents, other family
members and friends, filled the session with emotion. One of our partners
simply remarked, “These are not sad tears!”

Some of the poetry about ageing shared at our CREATE session

The remark above related to a late grandparent and sums up how connections to
people that we value go beyond being in their physical presence. Although a
small moment in HAIRE’s activities, reflections from such experiences can help
HAIRE start conversations around embedding care into communities. A deeper
care. Care that surpasses the functional needs of people. These needs are, of
course, extremely important. However, wellbeing is much more than the sum of
someone’s functional needs.

HAIRE’s Guided Conversations showed how valued activities and passions (walking, knitting, reading and going to local markets, to name a few) provided participants with joy and, unfortunately, sadness due to missing these activities and passions during the pandemic. These findings are in no way unique to HAIRE, but they do present the project with opportunities. The close-knit, caring network of people that HAIRE has engaged can help us to think differently about how we can act on these findings. A record of valued activities and passions in an area, and trying to ensure these activities are offered to locals is important, but opportunities to develop new interests and passions can be seen as a way of adding capacity to a place. Variety and extracurricular activities are regarded as a fundamental part of development in children (1).

I often reflect on why we try to find and measure a set of specific activities that show
benefit when adults are considered – rather than addressing how we can best
understand wellbeing priorities at an individual level. As stated during our
discussions about innovation on the second day of our CREATE workshops,
“…being willing to start small” to achieve innovations that stay open to input
from locals can make a difference – particularly if voices and perspectives are
responded to and not lost in bureaucratic processes. As such, digital solutions
are important in improving outreach, but it was encouraging to see ideas
develop around face-to-face activities and “going to people”.

A French Guided Conversation in action

Face-to-face interactions and events that bring people together were certainly
valued in responses to HAIRE’s Guided Conversations. Additionally, even if
revealed through anecdotes, we cannot overlook how local shop owners and
doctors used to be more deeply embedded in rural neighbourhoods. Services
were more face-to-face and such experiences need to be considered when
bringing older adults together.

Importantly, concerns around the participant profiles engaged by HAIRE so far
were raised at CREATE. Outreach that engages and is inclusive of vulnerable and marginalised groups is often referred to as challenging (2). Inclusive
communities ensure that everyone can feel part of where they live and, through
being able to voice and discuss their opinions, individuals can contribute to
shaping the future of a place. How we achieve more inclusive understandings of
wellbeing will be an important challenge for HAIRE and “…being willing to
start small” can benefit the project here too. Research can tend to focus on
numbers and achieving outcomes that are generated by large, so-called
representative groups. However, if we ask critical questions of the differing
perspectives that we have been able to gather through HAIRE’s Guided
Conversation, we can start small. Questions such as: why can someone that has
cared for others and worked hard in a sector that is not economically
generous end up in a financially precarious position in later life?, and, what
can we do to involve someone locally that has not been able to develop and/or
pursue interests due to a turbulent childhood and early adult life?

Finally, the question that stands out for me the most from our CREATE sessions
was: “Why, as a society, are we so rubbish at this?” The answer may lie in re-thinking care, where care is received and given by individuals in communities and not simply a service that aims to meet the functional needs of older adults. Encouragingly, we have examples in HAIRE where this has been achieved – whether it be between the researchers and delivery teams, between the delivery teams and the volunteers and/or between the volunteers and participants. Our next challenge is to find ways to engage the caring people on the project, across all sites, more closely. I look forward to
working on that challenge.

Footnotes

1. Metsäpelto, R., & Pulkkinen, L. (2012). Socioemotional Behavior and School Achievement in Relation to Extracurricular Activity Participation in Middle Childhood. Scandinavian Journal
 Of Educational Research, 56(2), 167-182. doi: 10.1080/00313831.2011.581681

2. Meyer, C., Evans, D., Soucat, A., Dkhimi, F., Akweongo, P., & Kessy, F. et al. (2018). Leaving no one behind? Reaching the informal sector, poor people and marginalised groups with
 Social Health Protection. Journal Of Poverty And Social Justice. doi: 10.1332/175982718x1536143686739

Shukru Esmene, s.esmene@exeter.ac.uk, University of Exeter

Senior Cluster University

This month’s blog comes from our HAIRE colleagues at the University of Artois, who have innovated a new research institute dedicated to the study of healthy ageing.

Thanks to Julie Varlet at the University of Artois for this contribution to our team blog, and thanks to our intrepid intern Valentine for the excellent translation (which you will find if you scroll down.) Contact details for the team at the University of Artois are included at the end of the English translation. 

Permettre aux personnes âgées de rester à domicile tout en favorisant le lien social est un défi pour notre société et nécessite une gamme de services adaptés et un savoir-faire innovant. L’université d’Artois, entend y contribuer grâce au Cluster Senior University, un institut de formation et de recherche, dont la formation « Management Sectoriel – Parcours Cadres de direction des établissements du secteur social et médico-social ».

La formation se donne pour objectif de former les futurs directeurs et cadres de direction du secteur social et médico-social en assurant une montée en compétences et en qualification dans un secteur qui ne cesse d’évoluer. Elle vise à assurer une prise en charge de qualité des publics vulnérables. L’objectif de la formation est de former les professionnels de demain capables de répondre aux nouveaux besoins et aux nouvelles attentes des seniors. L’enjeu de la recherche est de permettre des innovations au service de la qualité de vie des seniors. Cependant, avant d’entreprendre toutes actions visant à favoriser leur maintien à domicile tout en luttant contre leur isolement en milieu rural, il était nécessaire de comprendre l’environnement dans lequel ces personnes évoluaient. Ce fut le challenge pour l’année 2021 pour les 22 étudiants issus du Master 1 « Management sectoriel ». Ceux-ci ont travaillé en collaboration avec les partenaires des Flandres Intérieures afin de produire un diagnostic démographique, de l’accessibilité et des services du territoire par le biais de la boite à outils HAIRE. Tout l’enjeu de ce travail repose maintenant sur les actions à mettre en œuvre afin de lutter contre cet isolement rural en Flandre Intérieure.

Favoriser le maintien des personnes âgées au domicile tout en étant en mesure de répondre aux besoins des publics fragiles et dépendants constituera d’ailleurs leur problématique future. Ce pourquoi les étudiants du Master étudient actuellement une gamme d’innovation sociale, en rupture par rapport à l’existant ou se basant sur une solution existante pour significativement l’améliorer. Ces nouvelles solutions, intégrant les besoins repérés dans le discours des personnes âgées, seront proposées aux partenaires français lors des ateliers CREATE, voués à la conception d’innovations locales.

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The Senior Cluster University: a training and research institute

Enabling older people to stay at home while strengthening their social connections constitutes a major challenge for our society, one that requires an array of tailor-made services and innovative skills. The University of Artois figured out a way to rise to the task: we created The Senior Cluster University, a training and research institute that offers the training programme ‘Leadership and Management Course in Health and Social Care’.

This course aims to:

  • train future directors and executives in Health and Social Care by improving their skills and qualifications in a sector that is constantly evolving.
  • ensure that vulnerable groups are properly taken care of.
  • train future professionals so they can tend to the ever-evolving needs and desires of older people.
  • foster innovation for the benefit of the quality of life of older people.

However, before we could undertake actions to combat isolation in rural areas and enable older people to stay at home, it was essential that we first gained a better understanding of the environment these people lived in. This is precisely what the 22 students who completed their ‘Master 1: Leadership and Management’ aimed for in 2021. They worked alongside partners in the Flandres Intérieures [area in the Hauts-de-France region] to make a ‘demographic diagnosis’ of the accessibility and services particular to each locality using the HAIRE toolkit. The study’s significance and practical utility will be brought to bear through the initiatives that are to be put in place to combat rural isolation in Flandre Intérieure.

The next challenge will be to enable older people to stay in their own homes, and to tend to the needs of vulnerable and dependent groups. The Masters students are therefore studying a wide range of innovative social initiatives; some of them are a clean break from existing solutions, while others are based on existing solutions with the aim of improving them significantly. These new solutions, which take into account the needs that older people have expressed in conversation, will be brought forward to the French partners during the “CREATE workshops”, which are all about ideating local innovations.

 

For further information, please contact:

Julie Varlet, Post-doctorante  06 37 62 59 96

Cécile Carra, Professeure des universités, responsable scientifique 

 

 

 

Un an plus tard : Qu’avons-nous accompli ?

The HAIRE team at Exeter is pleased to have an MA Translation Studies intern, Valentine Naude, on board for a few months. This is the first of our dual language blogs. Welcome, Valentine!

Il y a un an de cela, le 10 février 2020, une toute nouvelle équipe s’est réunie autour d’un repas dans un petit bistrot de Lille pour célébrer le lancement du projet HAIRE, « bien vieillir grâce à l’innovation en Europe rurale » [en anglais « Healthy Aging through Innovation in Rural Europe »]. Voilà qui semble presque décadent, désormais : personne n’aurait pu prédire l’année qui suivrait et les difficultés que nous rencontrerions tous dans les affres d’une pandémie mondiale.

Le Covid-19 a beaucoup affecté notre groupe cible, exacerbant les problèmes que le projet HAIRE était précisément destiné à résoudre. Non seulement l’accès aux soins (santé et bien-être) est devenu plus difficile, mais notre groupe cible, déjà vulnérable, a encore plus souffert de la solitude et de l’isolation dans bien des cas. Les entretiens en face à face (les « Conversations Guidées » du projet HAIRE) n’ont pas pu se dérouler comme prévu. Alors que toute l’Europe s’est confinée, il a fallu trouver en toute urgence des solutions alternatives pour communiquer avec les personnes âgées.

Le premier défi a été de mettre en place une plateforme d’interprétation simultanée à distance, afin de faciliter la communication virtuelle avec nos partenaires européens. Grâce à nos efforts communs, nous avons pu adapter les Conversations Guidées – l’outil qui nous permet d’identifier les besoins et les désirs des personnes âgées – pour qu’elles soient menées en ligne ou par téléphone, selon les préférences du participant et du bénévole. Elles ont aussi et surtout évolué en fonction de la situation propre à chaque localité. Adaptée au milieu et axée sur la personne, l’approche adoptée par le projet HAIRE a été (et continue d’être) modulée avec soin à chaque étape d’adaptation de la « boîte à outils », depuis la planification du contenu jusqu’à son exécution. Une des caractéristiques de la boîte à outils consiste à utiliser une image propre à la localité du participant, de façon à l’aider à formuler ses besoins et ses désirs vis-à-vis d’espaces autant intérieurs qu’extérieurs. Tous les partenaires du projet ont contribué à ce travail de cocréation et ont été amenés à mieux connaître les localités de chacun.

Rien ne témoigne plus de leur engagement que l’implication indéfectible dont ils ont tous fait preuve au cours de l’année 2020 en dépit des restrictions relatives au Covid-19 dans leurs pays respectifs. A l’occasion d’un « Festival Bien Vieillir » [en anglais « Ageing Well Festival »], le conseil général du Sussex de l’Est et Rother Voluntary Action [organisme bénévole de la même région] ont animé de multiples dialogues communautaires en ligne pour le projet HAIRE, auxquels d’autres partenaires ont également assisté.

Tous nos partenaires n’ont cessé de donner d’eux-mêmes, et ce malgré la nécessité d’adapter leur approche aux autres actions entreprises par le projet HAIRE et aux collectes de données, par exemple « l’Analyse du Quartier » et les rapports des collectivités. (Ces composants de la boîte à outils permettent de mesurer et d’identifier le réseau social et les connexions de chaque individu, ainsi que de déterminer les opportunités – par exemple les activités ou les services – auxquelles les participants ont accès dans chaque communauté.) Là encore, les partenaires se sont entraidés pour trouver des solutions alternatives et résoudre mutuellement les problèmes intervenus dans la collecte des données.

Lors de notre dernière réunion entre partenaires, nous avons demandé à chacun de décrire le travail réalisé par le projet HAIRE en un mot, par le biais de l’application web Slido. La bulle de mots a peu à peu pris forme et trois mots se sont démarqués : Autonomiser [en anglais « empowering »] Communauté Ensemble. A la lumière de cela, on ne s’étonnera pas de voir que nous avons dépassé notre objectif de recrutement d’Aidants en dépit des confinements et d’un contact présentiel limité avec les personnes âgées. Les Aidants sont les bénévoles et les professionnels de la santé qui ont été formés pour utiliser la boite à outils du projet HAIRE et diriger des entretiens avec les personnes âgées. Au départ, notre objectif de recrutement était de 80 Aidants ; nous en avons maintenant 147, dont 115 qui ont reçu leur formation. Bien que nous ayons été retardés, nous sommes en voie d’atteindre un total de 600 participants aux Conversations Guidées : nous avons recruté 282 participants parmi lesquels 126 ont déjà commencé leurs conversations.

Dans sa conception, le projet HAIRE prend en compte ses futurs utilisateurs ainsi que le souci de la durabilité. Nos partenaires sont déjà en train de présenter le projet à de potentiels futurs utilisateurs de la boite à outils. Au Royaume-Uni, Devon Mind [association caritative axée sur la santé mentale] a présenté le projet HAIRE et son équipe à CoLab Exeter, un centre de cotravail intersectoriel et pluri-institutions sous le toit duquel environ 35 différents projets et services travaillent ensemble. Des échanges ont également eu lieu entre le conseil général du Sussex, Rother Voluntary Action et le conseil d’arrondissement de Hastings. D’un bout à l’autre de la région des 2Mers, nos partenaires sont en conversation avec les services sociaux des autorités locales ; en Belgique, des échanges ont eu lieu avec la Province d’Anvers et LiCalab (« Living and Care Lab »). En France, l’Université d’Artois a mis en place un partenariat – baptisé le « Cluster Senior » – entre plus de 30 organismes de la région; nos partenaires français se sont aussi associés au projet Interreg TICC, dirigé par Buurtzorg. Dans tous les pays, les sites pilotes maintiennent un contact régulier avec leur partenaire observateur. Au total, plus de 350 groupes locaux, groupes de bénévoles et une grande variété d’organismes ont contribué au partenariat HAIRE.

La transférabilité du projet HAIRE n’est pas seulement géographique, mais franchit aussi les frontières de multiples secteurs jusqu’à toucher des cibles inattendues. En effet, nous estimons que notre approche axée sur la personne pourrait être appliquée de manière plus large, par exemple pour résoudre le problème des sans-abris ou de l’addiction à la drogue. Pour de nombreuses communautés, il se pourrait que l’année 2021 et les suivantes représentent un chemin parsemé d’embuches. Nous ne doutons pas que le projet HAIRE relèvera le défi, et, loin de se contenter de cela, qu’il remettra à ces communautés les solutions et les outils qui leur permettront de s’épanouir au-delà de la pandémie.