Category Archives: Research

Supporting Anticipatory Care and Ageing Well: The Anchor Project

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“In the world of social innovation research it is more pertinent than ever to be attentive to change and adapt accordingly to emerging ideas and practices when presented. This has been the experience of the Social innovation Group and our current work on the ANCHOR project.” – Tom Bailey

The University of Exeter’s Social Innovation group (SIG) has now been working on place-based, person-centred issues within the health and social care sector to promote positive change for over 10 years. The primary focus of this multi-disciplinary research group in recent years has been the HAIRE project: Healthy Ageing through Innovation in Rural Europe, which is funded by the Interreg 2Seas European Regional Development Fund. Through the use of a co-designed Guided Conversation (GC) toolkit, HAIRE aimed to reduce loneliness, isolation and improve general wellbeing in the over 60 age group across rural communities in England, Belgium, France and The Netherlands. In terms of practical objectives, the project aimed to develop and test methods that empower and enable participants to:

  • Define what support is needed;
  • Participate in the design and delivery of services;
  • Develop solutions for the individual to reduce loneliness and improve quality of life, health and wellbeing, supported by the voluntary, private and public sectors.

HAIRE’s approach to achieving these objectives included the HAIRE toolkit, which was developed by the University of Exeter with support and consultation from the project partners in adapting the materials to cater to each location site. The toolkit is person-centred and allows for people to reflect on their own needs, interests, and aspirations in order for individualised care and support to be provided. The GC encourages a wide-ranging informal conversation that takes place between volunteers and participants. With the aid of visual and conversational prompts (see Figure 1), the GC fosters an honest and open dialogue between volunteer and participant to identify how the local area, community and the person themselves influence their wellbeing.

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Figure 1; A place-based visual prompt developed for Carnon Downs, Cornwall.

Due to the success of the HAIRE project across its eight pilot sites in Northern Europe, a new opportunity to use the same methodology in a wider area arose in Cornwall, England. This was named the ANCHOR project: Supporting Anticipatory Care and Ageing Well in Cornwall. This was funded by the NHS Cornwall Partnership Ageing Well/Urgent Care Response Programme Board as well as the Duchy Health Charity and a UKRI ESRC Impact Accelerator Award.

The aim of this project was to design and develop GCs to be implemented across the Coastal Primary Care Network (PCN) to support communities and anticipate undesired health outcomes. The ‘test and learn’ approach of the project was supported by the assumption that the toolkit would fit into existing work practices without adding to health practitioners’ workloads.

However, during the lifetime of the project there have been two significant innovations to service design and delivery in Cornwall which led the team to re-think how best the GC could fulfil the desired anticipatory care outcomes. These innovations were the emergence of the Community Hub model and a pilot scheme involving Community Health Workers (CHWs). These developments are part of the rapidly changing landscape of service design and delivery involving Cornwall’s voluntary sector (which we will deal with in another article). Understanding and adapting to these changes has been an important part of our work in ANCHOR.

While working in a practical capacity with both organisations and individuals to aid in the delivery of anticipatory care within the new innovation pathways we have also worked in a conceptual capacity to understand anticipatory care as both a philosophy and process of care. As a philosophy, anticipatory care speaks to the working assumption that care (provided by individuals, the community or health services) should enable people to maintain good health and wellbeing for longer. However, for those with chronic conditions, an Anticipatory Care Plan is necessary to precisely identify how an individual should be supported to prevent a deterioration in their condition and unwarranted health outcomes.

The ANCHOR project’s original aims – such as improving the management of long-term conditions, reducing loneliness and isolation, improving general wellbeing and reducing the demand on GP surgeries – are still important but can now be considered long term goals to be achieved while working in the emerging ecosystem of care including through Community Hubs and the CHW programme. Data will continue to be collected on these impacts, but the results will likely be published after the lifetime of the project.

The project is now essentially working to build capacity and skills in the sector that both supports the philosophy and process of anticipatory care. The ANCHOR project’s timeline serves to illustrate that flexibility, resilience and persistence required in the voluntary care sector and in research generally in order to succeed.

Article by Tom Bailey, Research Assistant on the Anchor Project

Feock Parish Looks to the Future: HAIRE ‘Thank You’ Day

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The following is a write up of Feock Parish’s ‘Thank You’ community event in February, 2023, held at Trelissick Gardens and organised by the Feock HAIRE team as the research project nears its end in March. Read on to find out what’s next for HAIRE in Feock.

A gentle thrum of chatter fills the Barn at Trelissick, which is twinkling with fairly lights and winter sun streaming through the windows. More than sixty people – including volunteers who have been involved with the HAIRE project in various ways – have gathered to hear what Feock Parish Council’s HAIRE team have to say about the project as it reaches its completion and to share in a discussion on its effect on the community and its legacy. They are also here for an almost-spring walk through the gardens with the National Trust team at this special estate on their doorstep.

The HAIRE team was led by Cllr Keith Hambly-Staite on behalf of Feock Parish Council and included Bex Rawbone, the Project Co-Ordinator and Cathy Whitmore, Project Administrator together with numerous volunteers who supported them. They all agree that HAIRE has impacted people’s lives by enabling older people to be listened to, and by supporting and developing a community directory of activities and services, improving connection and participation across the parish. Bex Rawbone created activities and events with very limited money and resources throughout a challenging time. These have had the effect of helping to empower people and improve their wellbeing. One new service put in place as a result of Covid restrictions has become an innovation the community cannot do without in the world after the pandemic: a telephone helpline.

A significant outcome of the project was the way Feock Parish Council re-examined its role regarding community support. It has determined to use the evidence of the project to continue with the services developed during the project. Cathy’s role as the helpful voice on the end of the telephone can’t be underestimated; throughout lockdown, it was Cathy who coordinated shopping and prescription collection for residents unable to leave their homes, and later, when supporting those living alone, she was not only coordinating services but forging connections with lonely residents. Feedback has been overwhelmingly positive from both service users as well as providers:

“HAIRE activity has helped people socially…and given them a new lease of life.”

“You have all done a wonderful job making things happen and providing a lot of help for a lot of people.”

“From an NHS point of view we appreciated everything that the team did for our patients – collecting scripts; helping wellbeing.”

Cathy’s role will be made permanent after the pilot stage of Project HAIRE ends, as it’s been recognised that people do so much better when they have a listening ear. Having time to talk and listen is one of the most important learning outcomes for Feock. When reflecting on the HAIRE outcomes, the team say it has engaged a whole new way of thinking about supporting the community – a two-way community engagement link whereby access to local information and resources is made easier. A community directory has been made available on a new community wellbeing website, MyFeock, and activities are advertised in numerous ways, using both traditional posters, word of mouth, and social media.

“It has connected people who would otherwise have stayed at home, often by themselves.”

“Sense of belonging and participation”

“Made life more interesting!”

The HAIRE approach means that throughout the pilot phase, the team were attentive to community-level interests, which can change over time. Some innovations have a life-cycle that is shaped by a community’s lived experiences: it’s useful for a time, then it can evolve into something new. What HAIRE provided – and will continue to provide – is dialogue with communities and understanding so that changes can be made as and when they are appropriate. The continued involvement of local volunteers and community members is vital as HAIRE moves beyond its pilot stage. As one of the local NHS service providers made clear to the volunteers: “We could not do it without you.”

If you would like to know further information about Feock’s wellbeing opportunities, help to support their services and to know what’s happening in Feock Parish, contact:

Telephone: 01872 863 333 (Monday – Friday, 9.30-12 noon)

Email:

Facebook: MyFeock Wellbeing

Website: www.myfeock.co.uk

Kate’s Grand Tour Part 3: Training in Adjacent Areas

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One of the objectives of our project is to extend the use of the HAIRE toolkit beyond the borders of our pilot areas. Kate’s visit to Laakdal (one of our pilot sites) included training new volunteers in the village of Bergom in the neighbouring municipality of Herselt. This region is a good example of how the toolkit can be customised to suit the community it is used in. Assisted dying is legal in Belgium, and the toolkit needed to include training volunteers in conversations about end of life. This is the third of four short blogs about Kate’s visit to Belgium in April, 2022.

On my second full day in Belgium, myself and the local project team (Katien, Sophie and Severine) train Jill Van der Auwera from the neighbouring municipality of Herselt, which comprises the villages of Herselt proper, Ramsel, Blauberg, Bergom and Varenwinkel. The sat nav takes me to an empty field about 5k from our meeting point. Thank goodness for Google Maps.  

We meet in a community hall in a small village surrounded by farmland and forests. This area feels more remote than Vorst, with more small, scattered settlements. The team in Laakdal – including the volunteers – will help to train professionals and volunteers in Herselt in the next few weeks. The issues that face their older community – especially the rising cost of living – are very familiar. We incorporate the insights from Laakdal’s volunteers into the session, which really helps with the practical aspects of applying the HAIRE toolkit elsewhere. After our session, we walk through the quiet, neat village to the magnificent Catholic Church with its lofty, modern interior and high, vaulted wooden ceiling.  In the evening, I drive to Bergom to attend the training of volunteers in conversations about end of life. This is a particular focus for Herselt and an issue for which they have adapted their Guided Conversations. Although the training is in Flemish, I keep up with the slides by putting a few key phrases from each into Google Translate. The training covers why and how we should talk about and prepare for the end of life along with useful case studies. Assisted dying is legal in Belgium, so some of the training is about that. A new model of palliative care is presented which introduces elements of palliative care alongside continuing treatment in a more gradual way. This breaks down the cure/care dualism in which only when the search for a cure ends does palliative care begins. Instead, this model seeks to open up the conversation about the journey towards the end of life more gradually and in a supportive and empathic way. It is a moving and very productive session.

 

Extending the HAIRE toolkit: Guided Conversations with In The Mix Project

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Over the past couple of months, a small team from the University of Exeter’s Social Innovation Group has been working on adapting HAIRE’s Guided Conversation tool for use in youth work. Two interns, Matilda Ferguson and Lewi Connor, have been involved in this process, and Matilda very kindly agreed to write a blog about it. Read on…

The HAIRE project aims to support older people in rural areas. One of the systems tested by the HAIRE project is Guided Conversations. These take the shape of a semi-structured discussion, prompted by images, general themes and talking points such as the local area, relationships, interests and community. Using the Guided Conversation tool, the HAIRE project has been able to explore the isolated situation of older people in rural areas, and identify their needs and desires. The Guided Conversations became not only part of a study into the rural isolation experienced by older people, but a tool for combatting it.

We have been working alongside In The Mix to explore implementing the Guided Conversations tool into youth work in rural areas. The In The Mix Project (ITMP) is based in the small town of Wiveliscombe, Taunton Deane. However, the charity provides youth and community services across Somerset. ITMP offers informal educational, activities and positive opportunities programmes to provide learning, skills and experiences, which supports young people’s personal, social, emotional and professional development, as well as boosting self-esteem and confidence. Their approach to youth work is flexible and based on issues and values prevalent to young people, their communities and their environment.

Image taken from In the Mix Project website

Working alongside the charity’s project manager John Hellier, we have tailored the prompts and structure of the HAIRE Guided Conversation to fit the focus of ITMP and context of youth work. Our version of the Guided Conversation covers three themes: place-based’, ‘people-centred’ and ‘empowerment’. We have also adapted the tool into a new format: an app. The app shows participants these themes, as well as some sub-topics, image prompts and radars which shows how positively they rate the topics discussed.

We hope that the Guided Conversations will help us to understand the situation of young people living in rural places in terms of the issues and relationships they have with their areas. This research will help youth work in rural areas to be responsive to young people’s needs. As well as this, we hope that like we have found in the HAIRE project, the Guided Conversations themselves will not just be research tools. The discussion provides opportunity for people to open up, share, connect and be heard. This itself will combat isolation and prompt discussion about solutions. The app also provides the opportunity for action through its ‘signposting’ feature, which will allow young people to find existing services to support them.

Over the last week, Lewi and Matilda went up to Exeter to meet with John to try it out. Our practice guided conversation lasted almost three hours and was a great way to understand how the tool would work in practice. After a few adjustments, the app is ready to be tested and we look forward to trying it out at ITMP sessions over the next couple of weeks.

Matilda Ferguson

Image taken from In The Mix Project website

 

 

 

 

Talking Deck to help people with life and health issues

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The Talking Deck is a new resource that has been co-designed by researchers from the University of Exeter, staff and volunteers at CoLab Exeter’s wellbeing hub, people with lived experience of homelessness, and artist Hugh McCann. The project is aligned with Project HAIRE and is based on the Guided Conversation model, showing how the HAIRE toolkit can be customised for different target groups.

The Talking Deck aims to facilitate conversations that are led and shaped by individuals seeking support. Sometimes the purpose of a conversation is simply to allow individuals to share their experiences with staff and volunteers at CoLab Exeter. As seen below, the cards in the deck include a collection of symbols, words and place-based images. They are carefully curated to help people speak about the issues that are important to them.

A variety of Talking Deck cards are in the photo, e.g. a key, a heart, trainers, animals, pictures of Exeter and words such as 'yesterday', 'future' and 'fear'.

Over a series of workshops, staff, volunteers, researchers and people with lived experiences came together to co-design the Talking Deck pack.

“Listening and co-production has been at the heart of this project. We’ve created these together with people from all sectors and walks of life. The cards are a way to facilitate conversations and help people find a way forward without getting to crisis point. People want to be listened to, first and foremost. To be seen and be validated.”  — CoLab Joint CEO Fiona Carden

The project was a partnership between researchers from the University of Exeter (Catherine Leyshon and Shukru Esmene from the Social Innovation Group‘s HAIRE team and Lorraine Hansford from the Wellcome Centre for Cultures and Environments of Health), CoLab Exeter and Devon Mind, funded through HAIRE and an ESRC Impact Accelerator Account (IAA) award. The IAA helped to translate the main principle of HAIRE’s Guided Conversation tool into a resource that suited CoLab Exeter’s working culture and the individuals who use their wellbeing hub. The principle here being the use of meaningfully co-designed visuals to facilitate wellbeing-related conversations.

“Seeing the Guided Conversation transform into the Talking Deck has been an incredibly exciting and rewarding process. Transferring our tools into new settings to help different groups and organisations always depends on successful co-design. We have worked alongside staff from CoLab and people with lived experience to produce something that can genuinely help people to have more in-depth, productive conversations about their needs, aspirations, hopes and fears.” — University of Exeter researcher Professor Catherine Leyshon

CoLab Exeter’s wellbeing hub hosts around 30 voluntary sector and statutory organisations who support people in Exeter with experiences of homelessness, addiction, the criminal justice system, the care system and domestic abuse. Over a series of workshops, staff, volunteers, researchers and people with lived experiences came together to co-design the Talking Deck pack. The packs are currently being trialled by staff and volunteers at CoLab and in other organisations, for example Julian House have experimented with using the Talking Deck in key worker support sessions with young adults in supported accommodation. So far, feedback from users of the Talking Deck has focused on how the cards help facilitate conversations that are led by the individual, rather than the staff member.

“It’s been really exciting to hear people’s reactions to the new cards. Support workers who have tried them out reported back that they were surprised how well such a simple tool opened up conversations, and helped people to talk about things that were important to them that they hadn’t raised before.” — University of Exeter researcher Lorraine Hansford

Workers commented that using the cards had given them more insight into people’s interests and concerns, and ‘opened different doors’ for people to talk about what is important to them, with issues sometimes emerging that would not necessarily come up in standard assessments used by the organisations:

“I was sceptical at first… I was quite surprised at how it was more powerful than I thought.”

“It’s another way of communicating with people, pictures have a connection to memories. For people who are vulnerable, talking can be intimidating, and it can bypass that in a gentle way.”

There is still work to be done, as the project does not intend to be prescriptive about how the resource is used. Ways of using the cards need to consider how some individuals may find engaging with the entire Talking Deck overwhelming and/or feel unsure about where to start. Continued exchanges between organisations that use the cards will be valuable in promoting the flexibility of the resource and in sharing new practices. Importantly, a Mental Health Alliance, including CoLab Exeter and Devon Mind, can potentially provide a platform for practice-led exchanges and skills sharing to take place. The Talking Deck’s launch will engage members of the Mental Health Alliance in scoping the coordination of such a platform.

Overall, the Talking Deck can be used informally in different settings to help guide conversations. The cards predominantly intend to give people choice about the topics that they wish to discuss, whilst helping to start conversations that may be difficult for people to raise.

After collating a last round of feedback, the finalised Talking Deck was launched at an event at CoLab Exeter on 3rd May 2022.

For more information, contact: Professor Catherine Leyshon (c.brace@exeter.ac.uk) or Lorraine Hansford ().

Picture of collaborators from MIND, CoLab and the University of Exeter

Left to Right: Tom Cox (Devon MIND), Fiona Carden (CoLab), Lorraine Hansford and Catherine Leyshon (University of Exeter)

 

 

New Perspectives on Geography and Loneliness: Introduction

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Jo Little, Shuks Esmene, Catherine Leyshon and Michael Leyshon, researchers at the University of Exeter, have been working on a new paper about loneliness which we introduce below. It’s one of the key issues for the rural ageing population in our study, and it’s particularly on our minds as we post, as it was recently Mental Health Awareness Week in the UK, and loneliness was the theme. For some practical tips on coping with loneliness in later life, the Mental Health Foundation has created a toolkit which you can access here.

Over recent years there has been growing recognition from government, policy makers, academics and the public of the significance of loneliness within contemporary society and with the associated deep and enduring negative consequences for wellbeing and quality of life. For example, a recent study characterises loneliness’s societal impact as follows: “Social isolation and loneliness has been classed as a major public health concern due to its negative physical and mental health implications, and living in a remote or rural area is a prominent contributing risk factor”. Loneliness has been referred to by the UK Minister for Loneliness as one of the greatest challenges of our time.

While the visibility of loneliness has increased substantially, and more understanding exists concerning its links to health, there are still important gaps in current research which we will explain and develop in our paper. We aim to develop critical scholarly understandings of loneliness that go beyond measurable indicators and risk factors (such as living in rural settings and mobility issues). While such indicators and risk factors are important in producing an overview of loneliness’s causes and impacts, loneliness is increasingly seen as not simply an individual problem and an issue that manifests due to a combination of risk factors, but as more inherently social, cultural and relational. As Geographers we are mindful of the difference that space and place make in both conceptual understandings of loneliness and its manifestation as a lived experience.

As we write, we begin with a review of the study of loneliness, summarizing some of the findings of what have been perhaps more traditional attempts to identify and measure experiences of loneliness. This provides an understanding of key trends but acts more as a springboard for the next part of the paper in which we, first, provide an improved conceptual understanding of loneliness as a dynamic part of the human condition, the definition of which derives from a set of cultural expectations as much as a lived experience which is embodied and performed in everyday life. We ask what is the connection between the apparent ‘epidemic’ of loneliness and the human condition in a world characterised by endless connection?

Second, and in a linked point, we call for more work on the multiple, shifting ways in which loneliness forms part of the lived experience. Much research implies a somewhat uncritical view of loneliness as a binary condition of being or not being lonely. This has implications for the sorts of solutions that are provided by governments, charities, communities, and individuals, which sometimes tackle ‘aloneness’ rather than ‘loneliness’. Loneliness has temporal and spatial dimensions, it comes and goes, can be experienced in a crowded place or when alone, has causes that are both identifiable and elusive, is linked to a sense of self and the place of the self in the community and wider society. Ultimately, loneliness should be understood as a profoundly subjective experience. Building on and developing Franklin’s 2009 paper, ‘On Loneliness’, we provide a critical examination of the key ‘taken for granted’ characteristics of loneliness. This will explore how loneliness is felt and experienced in contemporary society – and in particular how it relates to social bonds.

Our paper argues that a focus on space is a critical part of the complex jigsaw of loneliness – not simply that loneliness occurs more in some places than others – rather, that place can be central to the ways in which loneliness ‘sticks’ to identity. To explore these issues, we take as our focus rural spaces and the particular relationship between the constructions and contradictions of rurality and loneliness as part of its lived reality.

Kate’s Grand Tour Part One: A Visit to Rother

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Professor Catherine Leyshon, our Principal Investigator, was able to travel for the first time since our project launch in early 2020. She referred to her trip as the “Grand Tour”! We asked her to write about her journey to East Sussex and subsequent visit to Laakdal in Belgium, and give us a writerly flavour of what those places look and feel like, since we’ve been unable to visit. Here’s part one, starting in Rye, East Sussex. More posts to follow!

I arrive at Rye station in afternoon spring sunshine opposite Jempsons, which looks to be a well-stocked grocery store/deli with attractive displays. It’s a short walk to the Ship Inn through the historic redbrick town centre. It’s rush-hour in Rye, with children eagerly getting on the train home from school. The offices of the Bluebird care agency remind me that Rye has an aging population, many of whom suffer from isolation and loneliness. This is why Rye is part of HAIRE, along with the nearby town of Robertsbridge, both in the county of East Sussex.

I turn off the delightfully named Wish Street onto Wish Ward in the direction of a disused factory, a piece of industrial heritage referencing the area’s past. A former bakery, it now houses a pottery. I walk past picturesque redbrick and half shingle houses. The pretty townhouse along a cobbled street with a new Jaguar parked outside tells a story that I’m only too familiar with from Cornwall where the picturesque rural setting can hide great disparities in wealth. Mermaid Street, with its ancient, rounded cobbles, opens up to my left. The Ship Inn – my destination after 7 hours traveling from Cornwall, sits in an attractive riverside location. After dumping my bags, I go for a run along a levee between the river and a nature reserve. It’s a lovely part of the world – startlingly flat compared to Cornwall.

The next day, I meet four volunteers from HAIRE and the team from East Sussex County Council, Rother Voluntary Action, and Lorna Ford, the new Deptuty CEO from Rother District Council. We all feel thrilled to be able to meet up after two years on Teams. In that time, 16 volunteers have been recruited and trained, 76 Guided Conversations have been held and more than 200 hours of information about health and wellbeing have been used in the research analysis. Key themes prioritised through the innovation process are loneliness, accessing information, life transitions, and staying active.

We have a great meeting, discussing the volunteer experience of using the HAIRE toolkit – especially the Guided Conversation – and the legacy of HAIRE which will be felt through the pilot projects in Age Friendly Rother, now officially a part of the World Health Organisation’s Age Friendly Community programme.

The eight domains of Age Friendly Communities are illustrated. They are: Communication and Information, Community and Healthcare, Transportation, Housing, Civic Participation and Employment, Outdoor Spaces and Buildings, and Respect and Social Inclusion. 

Above: the eight domains are Communication and Information, Community and Healthcare, Transportation, Housing, Civic Participation and Employment, Outdoor Spaces and Buildings, and Respect and Social Inclusion. 

 

 

A systematic review on the impact of social networks on loneliness among older people in rural areas

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As part of the HAIRE project, the University of Plymouth is undertaking a systematic review on the impact of social networks on loneliness among older people living in rural areas. In this month’s blog, Basharat Hussain and Mahrukh Mirza, from the University of Plymouth, explain the process and findings to date.

Healthcare related decisions are critical and therefore need to be based on high quality scientific evidence. The scientific evidence on a topic is generated through individual studies. However, evidence from a single study may not offer confidence to policy makers and practitioners to change an existing practice or adopt a new intervention. This requires an acceptable method to pool all the relevant evidence on a topic and to make the information accessible to busy policy makers and practitioners.

Systematic review is a well-recognised method of identifying, evaluating and summarising evidence from all relevant individual studies, thereby making the available evidence readily accessible to decisionmakers. In a systematic review, all studies published on a topic (in our case, healthy ageing) are searched through online bibliographic databases (e.g., MEDLINE). The online searching of databases is undertaken using a comprehensive, reproducible, and predefined search strategy. This search can result in few hundreds to thousands of studies published on the topic globally or a geographical region of interest (e.g., Europe). The searched studies are screened using strict and narrow inclusion and exclusion criteria. These criteria can consist of research participants (e.g., age over 60 years), setting (e.g., rural areas) and phenomenon of interest (e.g., impact of social network on loneliness). All studies meeting the inclusion criteria are thoroughly read, quality assessed, and their findings synthesised. The final product is a summary of findings on a topic of interest and identification of any gaps for further research in that area.

Image Source: https://libguides.library.curtin.edu.au/systematic-reviews

The review started in January 2022 and will be completed by April 2022. A comprehensive search strategy has been developed to search five main healthcare related databases on the topic. The search has identified over 38,000 published studies on the topic globally, starting from 1954 to January 2022. Screening of the published studies is underway. An interesting finding struck during the screening process is an acute lack of research on social networks and loneliness among older people in rural areas of Europe.

The findings from this review will be helpful not only for the HAIRE project, but also for policy makers, practitioners and researchers who have an interest in the topic. If you are interested in knowing more about this systematic review or would like to have copy once the findings are published, please get in touch with Dr Basharat Hussain, Research Fellow in Health Innovation, University of Plymouth (Basharat.hussain@plymouth.ac.uk), OR Dr Mahrukh Mirza, Lecturer in Clinical Education, University of Plymouth (Mahrukh.mirza@plymouth.ac.uk).

L’impact du projet HAIRE : un portrait de notre site pilote à Feock (Translation)

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Below is the French translation of an earlier blog post in English detailing the progress of HAIRE in the parish of Feock, one of our UK pilot sites. Thanks as always to our University of Exeter intern, Valentine Naude.

Cathy Whitmore, responsable administrative dans la paroisse civile de Feock au Royaume-Uni, est une interlocutrice fondamentale pour les différents membres de sa communauté. Durant cette dernière année, elle a passé le plus clair de son temps à répondre aux appels téléphoniques et à mettre en place des mesures d’assistance pour les membres de sa communauté – tout au long des divers confinements ainsi qu’au terme de ceux-ci. Elle a également rassemblé les points de vue de tous les intervenants qui jouent un rôle dans le perfectionnement et le développement de produits et de services visant à améliorer la vie des personnes âgées – et avant tout, les points de vue des personnes âgées elles-mêmes. Le projet HAIRE a donné l’opportunité aux résidents de parler de sujets qui leur tiennent à cœur.

Pendant cette période difficile, le projet a donné de la motivation, de l’énergie, et de l’assurance à tous ceux qui ont fait du bénévolat et travaillé au sein de la communauté, y compris les commerces, les écoles et les groupes religieux. L’esprit communautaire a été mis à rude épreuve tout au long de la pandémie ; dans un précédent article qui traitait de la bonté des bénévoles au plus fort de la crise COVID, nous remarquions que 150 bénévoles se sont portés volontaires pour venir en aide aux autres villageois. Pour cette raison, Feock n’a pas eu la moindre difficulté à recruter des « Aidants HAIRE » – il s’agit des bénévoles qui viennent à la rencontre des personne âgées pour mieux comprendre leurs attentes et leurs besoins. Il y a même eu un surplus de 50% en matière d’Aidants HAIRE recrutés dans la paroisse civile, ce qui a surpassé toutes les attentes.

Une interview récente, réalisée à Feock avec la bénévole Sue Thomas, est parue durant l’évènement en ligne « Virtual Voyage », créé par Interreg 2 Mers – qui finance notre projet – à l’occasion de la Journée de la Coopération Européenne le 21 septembre 2021. Sue a rejoint le projet dans l’intention de venir en aide à la communauté locale. Dans le cadre du processus de préparation des Aidants HAIRE, elle a suivi des séances de formation visant à inculquer aux bénévoles des compétences d’écoute, d’interview, de protection et d’autres encore, qui pourraient bénéficier non seulement aux individus, mais aussi à l’ensemble de la communauté. Alors qu’Interreg mettait en valeur le travail de tous ceux qui se trouvent sur le terrain à travers la zone européenne des 2 Mers, nous avons eu un aperçu des résultats obtenus par les bénévoles de Feock. Vous pouvez accéder à l’interview de Sue sur YouTube ici.

Selon Cathy, le projet a créé un point de ralliement pour les personnalités notables de la communauté – celles qui tissent des liens sociaux et celles qui les influencent. Il s’agit de personnes qui faisaient déjà du bénévolat, en proposant et en dirigeant des activités de groupe, et les membres des conseils, par exemple – toutes des personnes qui ont un intérêt direct dans l’amélioration de la vie de nos séniors. Travailler ensemble sur le thème central du bien vieillir permettra à terme d’ouvrir la voie à des solutions plus solides et interconnectées. La paroisse civile de Feock est constituée de plusieurs communautés, et le projet HAIRE leur a permis de se considérer comme une seule famille de villages réunis dans la paroisse civile de Feock, avec des problèmes et des préoccupations similaires, plutôt que des entités indépendantes sur une échelle d’importance et de statut, afin que plus de personnes puissent bénéficier des initiatives locales.

Le projet HAIRE a inspiré ses nouveaux participants et les a incités à présenter leurs idées et proposer leur aide. Un projet intergénérationnel a été lancé par un artiste local qui a découvert le projet HAIRE en discutant avec l’équipe, et ils sont maintenant en train de planifier un « Festival Memory Shanty ». Les séniors de la communauté feront le récit de leur vie et partageront leur point de vue unique avec des écoliers, qui travailleront avec des musiciens pour composer des chansons de marin basées sur les vies réelles de leur communauté. De manière générale, le projet HAIRE a donné l’opportunité aux gens de faire preuve de créativité et d’originalité – il n’y a « pas de mauvaise idée ». Il y a quelque chose de très puissant à voir les idées des uns et des autres se transformer en action positive.

Les conversations avec les participants ont amélioré notre compréhension des changements qui jalonnent le cours d’une vie, et de leur impact à un niveau multigénérationnel. Le vieillissement nous impacte tous, pas seulement les « personnes âgées ». Le danger d’un monde qui se rétrécit au fur et à mesure que l’on vieillit, nous exposant à la solitude, est largement reconnu. Sachant cela, les individus peuvent commencer plus tôt à planifier leur avenir, avec la participation d’organismes d’assistance.

Tous les sites pilotes visent à améliorer les services qui sont déjà en place et qui jouent un rôle important, ainsi qu’à établir un lien avec eux. A Feock, l’importance et la disponibilité croissantes de la prescription sociale permet aux résidents d’être dirigés vers des activités locales pour une multitude de raisons différentes, par exemple la perte d’un être cher, l’anxiété ou la solitude. Les bénévoles du projet HAIRE sont disponibles pour se mettre en binôme avec des membres de la communauté en fonction de leurs intérêts – par exemple la natation, le jardinage ou la promenade. Les bénévoles les accompagnent en leur tenant la main (métaphoriquement) pour les aider à découvrir ou redécouvrir certaines activités sociales, et ainsi développer confiance et relations. L’équipe a développé une liste « Que se passe-t-il ? » et un « Répertoire des groupes, services, et assistances téléphoniques » pouvant être envoyés aux résidents, qui sont plus tard contactés par téléphone et se voient offrir la possibilité de conseils supplémentaires et d’assistance s’ils en ont besoin à l’avenir. Toutes les activités organisées dans la paroisse civile sont annoncées et révisées de façon régulière dans un format accessible et inclusif.

Les ateliers CREATE qui ont eu lieu pendant la période estivale ont rassemblé tous ces individus dans un espace de tolérance pour qu’ils puissent partager leurs idées, exprimer leurs opinions, et se sentir écoutés et respectés. Le projet HAIRE a pu répondre aux remarques et à la demande en solutions rapides qui pourraient être développées sur le long terme. Il faut noter que le travail de vérification autour de la pertinence des services existants et le travail de création de nouveaux services ne s’arrêteront pas quand l’étude touchera à sa fin. Les communautés impliquées sont en train de développer un type de compétences et d’opportunités qui peuvent réellement changer les choses, et qui pourront évoluer avec leur temps jusqu’à garantir une culture d’écoute et d’apprentissage aussi naturelle que florissante, qui engendrera une action positive et adaptée aux personnes âgées.

Le projet HAIRE fait appel à ses intervenants à intervalles réguliers et de façon différente tout au long du projet, tandis que nous continuons de promouvoir un changement global et durable du système ainsi que d’amorcer et de développer des modèles innovatifs de prestation des services. Dans cette perspective, nous organisons régulièrement des réunions de groupe pour établir une ligne directrice, par exemple la « HAIRE Action Group Meeting » de la paroisse civile de Feock, qui a eu lieu en Septembre 2021.

The impact of HAIRE: A profile from our Cornish pilot site in Feock, UK

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Cathy Whitmore, HAIRE’s administrative officer in the Parish of Feock, UK, is a key point of contact for community members. Over the last year, Cathy has spent her time fielding phone calls and organising support for community members throughout the various lockdowns and beyond, and collating points of view from all stakeholders invested in the improvement and development of products and services that aspire to support and enhance the lives of older people – most importantly from older people themselves. HAIRE has offered residents an opportunity to speak up on matters close to their hearts.

The project has provided a sense of purpose, energy, and confidence during a difficult period for those volunteering or working in the community, including businesses, schools and faith groups. The spirit of community has been tested throughout the pandemic; in a previous post discussing the kindness of volunteers at the peak of the covid crisis, 150 volunteers come forward to help their fellow villagers. Because of that, Feock had no difficulties recruiting “HAIRE Enablers” – these are the volunteers who meet with older people to understand their needs and service desires. In fact, there was a 50% over-recruitment of volunteer HAIRE Enablers in the parish, which exceeded all expectations.

A recent interview with volunteer Sue Thomas in Feock featured in our project funder Interreg 2 Seas‘ “Virtual Voyage” online event, which was created for European Cooperation Day on September 21, 2021. Sue joined the project in order to help and support her local community. As part of the HAIRE volunteer preparation process, Sue took part in training sessions designed to provide skills in listening, interviewing, safeguarding and other skills that not only benefit the individual, but the community as a whole. With Interreg showcasing the work of people on the ground all over the 2 Seas area in Europe, we were given a glimpse into Feock volunteers’ achievements. Sue’s interview can be accessed on YouTube here.

Cathy said the project has created a rallying point for key figures in the community – social weavers and influencers. These are people already involved in volunteering, offering and running group activities, and council members, for example – all people who have a vested interested in making the lives of our older people better. To work together on the central theme of healthy ageing will ultimately enable stronger and more linked up solutions. Feock Parish is made up of several communities, and HAIRE has enabled them to envisage themselves as a family of villages within Feock Parish, with similar issues and concerns, rather than separate entities on a scale of importance and status, so that more people can benefit from local initiatives.

HAIRE has given inspiration and motivated fresh personnel to come forward with ideas and offers of support. An intergenerational project has been initiated by a local artist who discovered HAIRE through conversations with the team and they are now putting together plans for a “Memory Shanty Festival.” Older people in the community will share their life stories and unique points of view with schoolchildren, who will work with musicians to produce sea shanties based on real lives in their community. In general, HAIRE has provided people with an opportunity to be creative and innovative – there is “no such thing as a wrong idea”. There is something very powerful in seeing one’s ideas turn into positive action.

The conversations with participants have provided a better understanding of life changes and their impact on a multi-generational level. Ageing impacts us all, not just “older adults”. There is widespread recognition of the danger of a shrinking life world as we age, which puts us at risk of loneliness. Knowing this, it means individuals can start to plan for the future earlier, with the involvement of supporting organisations.

All pilot sites aim to improve the services already in place that have value and link in to them. In Feock, social prescribing’s growing importance and availability means that residents can be signposted to local activities for a range of different reasons, including bereavement, anxiety or loneliness. HAIRE’s volunteers are available “buddy up” with community members depending on their interest – such as swimming, gardening or walking.

The volunteers provide a guiding ‘hand-hold’ to help people discover or return to social activities, developing trust and relationships. The team has created a ‘What’s On’ list and ‘Directory of Groups, Service, and Helplines’ which can be sent to residents, who are later contacted by telephone and given the offer for further advice and support if required in the future. All the activities in the parish are advertised and reviewed on a regular basis in an accessible and inclusive format. They even advertise opportunities in a community phone box.

The CREATE workshops held throughout the summer months brought people together in a safe place to share ideas, voice opinions and feel listened to and respected. HAIRE has been able to respond to comments and requests to make quick wins in the short term with opportunities to grow in the long term.

We are all thankful for the work of the amazing volunteers involved in this project. During June’s National Volunteer Month, service users were asked for any comments they would like to pass on to Feock’s volunteers as well as posting on Facebook pages for anyone who would like to thank a member of the community for their support. A beautiful “thank you tree” was put together by a talented resident and used as a backdrop to the CREATE workshop sessions.

Importantly, the work to look at the relevance of services and the creation of new ones won’t just “stop” when the research comes to an end. The communities involved are developing the sorts of skills and opportunities that can really make a difference and can evolve with the times to ensure an organic, thriving culture of listening and learning for positive, age-friendly action with the voices of residents at the fore.

The HAIRE project involves its stakeholders at regular intervals and in different ways throughout the project as we continue to pursue widespread, sustainable system change and to initiate and support innovative models of service delivery. One element of this is to hold regular steering group meetings, such as the Parish of Feock’s HAIRE Action Group Meeting. This took place in September 2021.